Clinical Nursing Research

 

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Clinical Nursing Research, Vol. 15, No. 1, 27-45 (2006)
DOI: 10.1177/1054773805282356

Family Caregivers and Transition to Long-Term Care

Vicki R. Strang

University of Alberta, Edmonton, Canada

Priscilla M. Koop

University of Alberta, Edmonton, Canada

Suzanne Dupuis-Blanchard

Université de Moncton, Moncton, Canada

Marlene Nordstrom

Capital Health Authority, Edmonton, Canada

Betty Thompson

Capital Care Group, Dickinsfield, Edmonton, Canada

This study’s purpose was to explore family caregivers’ experiences while they waited placement of family members with dementia in long-term care and how they coped during this period of waiting and transition. In this exploratory descriptive qualitative study, interviews were conducted with 29 caregivers at entry to the placement wait-list and at 3 to 4-month intervals thereafter. Final interviews, with 15 caregivers, were conducted shortly after admission to long-term care. When "the waiting begins," the themes of crisis as initiator, synchronicity, control, and reciprocity emerged. "After placement" included the themes of deeply bonded relationships, attempting continuity, and sorting out the change. The findings provide new insight into family caregiver experiences during and after placement of a family member with dementia in long-term care. Clinicians must recognize that wherever services are provided, at home before placement or in institutions after placement, family caregivers must be incorporated as full partners in care.

Key Words: family caregivers • dementia • transition • long-term care • waiting list


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