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Clinical Nursing Research
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Being the Next of Kin of an Adult Person With Muscular Dystrophy

Katrin Boström

Swedish Institute for Disability Research, Örebro and Linköping Universities; Center for Rehabilitation Research, Örebro County Council

Gerd Ahlström

Helena Sunvisson Örebro University, Sweden

Helena Sunvisson

A chronic disorder affects all members of the family in various ways. The aim of this study is to elucidate the next of kin's (N= 36) experiences when an adult family member has muscular dystrophy. The relationships were partner (36%, n= 14), parent (18%, n= 7), child (21%, n= 8), sibling (15%, n= 6), and other relative (3%, n= 1). Latent content analysis is employed and involves an interpretation of the interviewtext. The results showthe meaning of being close to a person with muscular dystrophy through the themes that emerged: exposure of the family; the span between obligation and love; being vigilant, protective, and supportive; and striving for an ordinary life. This study reveals a need for healthcare staff to understand the next of kin's narrated meaning of changes when a family member has a progressive disease.

Key Words: next of kin • family • chronic disease • muscular dystrophy • latent content analysis

Clinical Nursing Research, Vol. 15, No. 2, 86-104 (2006)
DOI: 10.1177/1054773805285706
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[Abstract] [PDF]