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Clinical Nursing Research
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*Alzheimer's Caregivers
*Alzheimer's Disease
*Caregivers
*Family Issues
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What's this?

Development of an Intervention Program for Alzheimer's Family Caregivers Following Diagnostic Disclosure

Francine Ducharme

Université de Montréal, Canada

Line Beaudet

Université de Montréal, Canada

Alain Legault

Université de Montréal, Canada

Marie-Jeanne Kergoat

Institut universitaire de gériatrie de Montréal, Canada

Louise Lévesque

Institut universitaire de gériatrie de Montréal, Canada

Chantal Caron

Université de Sherbrooke, Québec, Canada

The purpose of this qualitative study was to develop a pro-active psycho-educational intervention program for Alzheimer's family caregivers following diagnostic disclosure. Based on a theoretical model of role transitions and a participatory approach, the study comprised four steps: (a) exploring caregiver needs; (b) developing and validating a program proposal based on caregiver-expressed needs; (c) formalizing program through intervention mapping; and (d) testing and qualitatively evaluating the program. The psycho-educational program consisted of seven individual sessions aimed at fostering knowledge and skills required to ensure successful transition to the caregiver role. The approach used in this study can serve as a guide for the development of nursing intervention programs. Intervention mapping allowed, in particular, integrating theoretical and empirical elements in a formal intervention model.

Key Words: family caregivers • diagnostic disclosure • dementia • intervention development • qualitative evaluation

Clinical Nursing Research, Vol. 18, No. 1, 44-67 (2009)
DOI: 10.1177/1054773808330093


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